Adult Refsum Disease is an ultra-rare Leukodystrophy. Global DARE Foundation was recently founded to support individuals with Adult Refsum Disease. Our mission is to promote world-wide awareness and better quality of life for all who are diagnosed with Adult Refsum Disease. You can find out more about Adult Refsum Disease at our website: https://www.defeatadultrefsumeverywhere.org/ We are hosting our first conference in London on May 15, 2020. We can use help finding more patients. Please share with anyone that may benefit. We will also be at the United Leukodystrophy Foundation conference in June.
2020 Refsum Congress Flyer
Download PDF • 231KB
This article is really contains lot more information about This Topic. We have read your all the information some points Cafe Racer Biker Jacket are also good and some usually are awesome. Great post I would like to thank you for the efforts you have ma