Family Voices



The genes we inherit from our forebears help shape our lives - and in too many cases, can cut young lives short well before their time. Now a cutting-edge stem cell therapy is achieving some success, but is still not available in the United States. 

Thanks to Telethon, the little boy and his family can instead hope for a normal life.

2017 Leukodystrophy Care Network Video

Hunter's Hope asked our families what words of advice they would give to families newly diagnosed with Krabbe and other Leukodystrophies.

2017 Leukodystrophy Care Network Video

Thomas Jefferson University researcher Dr. David Wenger was honored with a Lifetime Achievement Award at the 2019 Cupcake Gala at Lincoln Financial Field last night.

You're not alone

Families share children's stories

Philadelphia, PA 19104

  • White Facebook Icon
  • White Twitter Icon
  • White Pinterest Icon
  • White Instagram Icon

© 2017 Leukodystrophy Family Forum . Proudly created by CAZ Media Design